Category: body

  • If this is you….

    If today you found yourself curled up on the couch after lunchtime, indulging in novel-reading, and while reading, there was this tender conversation between two soldiers–one who’d only just barely had a finger amputated and one who had lost a leg long ago but was dying of consumption…

    And if when the younger, now-nine-fingered soldier handed the dying soldier his missing finger for it to be buried along with the dying soldier, you started bawling and had to put the book down.  Because if this is you, you realized that so rarely had you ever read a scene that captured the loss so well.  And when older soldier explained to younger one that he would still feel his finger there–even decades after it was gone–you wiggled your phantom toes a bit and remembered that you feel that way, too.

  • embodied


    self-po, originally uploaded by pilgrimgirl.
    In one of the more important Mormon temple rituals, your body is washed with water and anointed with oil. This washing and anointing is mostly symbolic–water and oil are only touched to a few points on your skin as sacred words are repeated by the officiants. However, what is most memorable about this ritual, is that the interaction happens after you remove all of your clothing.* The only item allowed to be worn is a wedding ring. For modesty’s sake, your body is draped in a white sheet throughout the washing and anointing process.

    When I received this ritual, it didn’t occur to me to remove my artificial limb. Most likely that was due to the fact that I wouldn’t have been ambulatory without it, and also because I was not sure exactly what the “rules” were about such things and no one clarified them for me (for the most part, these rituals are not explained beforehand, due to their sacred nature). Since then I’ve learned that women with breast prosthetics can choose to wear them during the ritual. I’ve never heard any definitive word on the wearing of artificial limbs, but I suspect that it is allowable.

    Because of the staging of this ritual, it was not evident to the recipients that I was wearing an artificial leg until it was nearly completed, when the officiant bent down in front of me to bless my legs (while I was seated on a throne-chair). After undergoing the washing and anointing a few times, I learned to catch the gaze of the officiant as she reached out to touch my not-real leg. There was often a pause. Usually a knowing glance was exchanged between us as she continued on with the script of the ritual (were she to speak words other than those prescribed, the ritual would be deemed ineffective and would have to be repeated according the prescribed pattern).

    In the moments after the ritual, as we waited for me to be escorted by an officiant to the next step in the process, there was often a moment for some whispered conversation. Usually the officiant would mention something about my leg, asking how did I lose it, or commenting that my prosthesis looked very lifelike (which was back in the day before I chose to let my robotic innards hang out).

    Those ritual moments, are, for me, emblematic of how I view my relationship to my prosthetic leg. It seems as much a part of me as my tongue, or my eyes, or my liver. That I take it off at night and lay it next to my bed, doesn’t make it any less “me.” That it is a thing of metal and plastic and vinyl, doesn’t make it any less familiar than my other leg and foot. That it sometimes makes an audible whirring adjustment sound when I walk through quiet spaces, is no different than the familiar creaks of my organic joints. That its parts are fabricated from components that come from all over the globe, and are assembled by workers in Germany and are fitted to my body by men in Orange County, doesn’t make it any less me. Perhaps what makes it feel the most ‘foreign’ is the attention that my leg garners as I move through public space. It is the reaction of others that reminds me that I am different.

    I suppose that being a cyborg comes “naturally” to me. I couldn’t live my life normally without the microprocessor in my knee, or the metal crutches that I use when I’m not wearing my prosthetic. These tools are so much a part of my life that they are my life. They are familiar in the same way that my hands are on my keyboard. I don’t think each time I type that I am sending letters from my fingertips to the screen and out to you. I just do it. Like that, I just walk. And stand. And move. The way that I do.

    *Note: recently there were some changes to this ritual that include less physical interaction between officiant and recipient, and also how much clothing is removed beforehand. I am discussing how it worked back in 1992, when I first participated.

  • reflections

    vavoom

    Life has been moving at such a brisk pace, I’ve hardly had time to reflect lately.  But I just couldn’t let April slip by without a nod to just how good I’m feeling these days.  It hardly seems real to me that it was just two years ago that I had the injury that started with this, then developed into this, and then turned into six months of trauma that ended in surgery.  I still have the shiny pink seam on my lower left leg as a reminder, but the muscle tissue has filled in nicely since then.

    At the moment I don’t have anything terribly profound to say in addition to marking the time that’s passing.  Except that I still don’t take it for granted.  Everyday I’m grateful for my leg and for my healthy body that just keeps getting stronger and stronger.

    These roses are blooming up a storm in my garden right now.  Such beauty!

  • itchy itchy scratchy scratchy


    my back has muscles, originally uploaded by pilgrimgirl.

    My back is nearly always itchy–especially in that center spot between the shoulder blades. I think it has something to do my outrigger paddling and the stretching to the tendons and muscle fibers across my upper back.

    But it’s so terrifically annoying to have itches that I can’t scratch (or at least, where it’s not so easy to scratch)! Today I can hardly get any work done because of the distraction, which I’m guessing is from the hard workout with my team last night…[note to self: buy backscratcher for office!]

  • reflux

    A brief request: I’ve been battling gastric reflux issues for months now and OTC meds and lifestyle changes don’t seem to be working (I’m even cutting out my beloved afternoon tea…sigh). And the lack of quality sleep is starting to wear me down.

    Can any of you who’ve dealt with this share your best ideas for feeling better? I’ll be heading to the doc soon but I’d love to know if there’s something I should try that I haven’t yet, or just to hear from folks who’ve been successful in dealing with this problem.

    It’s such a little thing compared to other health issues that I’ve had, but I’m realizing that it’s not getting better and might not stay such a little thing…For example, last night I had a horrible spell of coughing, asthma, burning throat–all while I was just too tired to hardly be able to deal with it. And now I’m just so so tired. Help!

  • calling all artists!


    Given that my new bionic leg is a blank canvas that needs some attention, I’ve decided to offer the opportunity for my artist friends to decorate my prosthesis. I’m planning temporary “installations” that will be changed 3 or 4 times per year. While I’m wearing your art I’ll feature you on my blog and if you’d like I’ll carry your business cards and be a walking advertisement for your work.

    If you’re interested, drop me a line and we can discuss the details–the medium and the type of art that would work best for the dimensions of the project. Do note that you’d have foot, leg, and thigh to decorate. (no need to be physically present in SoCal, either–I can apply the art myself if you send it to me).

    I’m open to all types and forms of art–for example, I could imagine that poetry would work as well as visual art. So many of you, my readers, are incredibly creative and talented–I’d be thrilled to wear your work!

    Looking forward to hearing from all of you artistic folks: phddillyATyahoodotCOM. Feel free to forward this link to anyone outside the PilgrimSteps circle that might be interested.

    Pic by Gus Greeper from flickr

  • I, robot


    Jana 2.0, originally uploaded by pilgrimgirl.

    Really excited about the upgrade. Love the new sleek and shiny look and it feels so good!

    I’ll be hurting tonite, though. Getting a new leg is far harder than breaking in a new pair of shoes. It’s like hiking 20 miles in new stiff hiking boots that go all the way up to your crotch (not complaining, though–happy, happy, happy).

  • my steps


    pilgrimsteps, originally uploaded by pilgrimgirl.

    For the past few weeks/months I’ve been eking away at some projects, step by-step:

    –creating an exercise habit. I’ve been working out 6 days/week since early September. It’s not always easy to fit in and I don’t always enjoy the effort, but I love how important it’s become in my life and how good I’m feeling these days.

    –reconnecting with an old favorite activity, canoeing, as I learn how how to paddle outrigger-style. A friend’s been taking me out on the Back Bay periodically through the holidays and I’ve decided to join a team so I can train more intensely and race. I can’t believe that I’m nearly 40 and I’ve just joined up with a new team sport. It’s amazing the places this journey of my life takes me.

    –getting a spiffy new c-leg because mine’s an old out-of-warranty model. I had various fittings over the past 2 months and if all goes well I’ll have it in hand (or rather, on foot) Friday morning. This one will have a remote control. I kid you not. And no way am I telling my teenage kids where I’m hiding that little gizmo (no replay of “The Wrong Trousers” happening around here, I say)

    –working diligently on my academic projects, including the first final draft of the diphtheria chapter for my dissertation. It’s a love/hate thing: love the process of history-making, hate that my intentions are always loftier than what emerges on the page. I love/hate diphtheria, too–love learning about the disease (fascinating stuff, that), hate the sorrow and horror of lives lost to it.

    –finding novels again. For awhile I’d given them up, having grown weary of reading (not an unimaginable thing when you realize that I digest 4-10 books/week for my “work”). While in NYC I discovered books all over again. The joy! I’ve been coming home with a stack of novels from the library each week and am simply devouring them. I allow myself to read in that space of time after the daily work is done and I’m not quite yet ready for sleep. I just finished _The Blind Assassin_ and started _Arrowsmith_ last night.

    How about you, what steps have you been taking lately?

  • a bit sleepless


    Wounded, originally uploaded by pilgrimgirl.

    A day or two ago my lower leg started turning red hot and swollen. I think, now, that it’s just the result of a spider bite, but is it any wonder that I’ve found it pretty hard to sleep for the past couple of nights?

    Note: pic above was taken in May of last year, about a month after the injury that resulted in my 6-month encounter with an antibiotic-resistant infection

  • gettin’ medical

    I had some ancient tooth sealants (with decay lurking underneath) sandblasted off of my back teeth today. What a novel experience that was. Also had an MRI of my leg that took twice as long as it should’ve because they couldn’t find a vein to shoot the dye into (people, do you have any advice on how to get veins? Would weightlifting do the trick? I am getting desperate here). And (can you believe how many medical offices I visited today?), I had some way-overdue adjustments to my prosthetic limb. I am not joking when I tell you that the socket was hanging together with duct tape.

    I am so grateful for health insurance. Mostly because without the funds to pay for such medical necessities I would’ve left this earth long ago.

    I wish everyone had this same luxury.

    PS: My cold/flu is nearly gone now and both kids’ fevers broke yesterday. Praise cheeses.
    PPS: I am so thinking of getting a hand crank wheat mill just in case a hurricane ever hits SoCal. :)

  • Dear Nose

    Dear Nose:

    I miss being able to breathe through you. This mouth breathing stuff, it’s for the birds.

    Best,
    Jana

  • the facts of life…

    These these life & death portraits and the accompanying stories express in so many ways what I feel every day. That life is too short to put off happiness for some future date:

    Gerda couldn’t believe that cancer was cheating her of her hard-earned retirement. “My whole life was nothing but work, work, work,” she told me. She had worked on the assembly line in a soap factory, and had brought up her children single-handedly. “Does it really have to happen now? Can’t death wait?” she sobbed.

    And the subtext of this photo essay? Cancer fucking sucks.